Collecting and Storing Tissue Samples From Patients With Rare or Cutaneous Non-Hodgkin Lymphoma



Status:Active, not recruiting
Conditions:Lymphoma, Hematology
Therapuetic Areas:Hematology, Oncology
Healthy:No
Age Range:Any - 21
Updated:8/9/2018
Start Date:May 30, 2005

Use our guide to learn which trials are right for you!

Rare And Cutaneous Non-Hodgkin Lymphoma Registry

This research study is collecting and storing tissue samples from patients with rare or
cutaneous non-Hodgkin lymphoma. Collecting and storing samples of tissue from patients with
cancer to test in the laboratory may help the study of cancer in the future.

OBJECTIVES:

I. To determine the clinical features, treatment, and outcome of patients with rare or
cutaneous pediatric non-Hodgkin lymphoma (NHL).

II. To determine the pathologic and biologic features of these diseases, including molecular
diagnostics and flow cytometry.

III. To establish a bank of these pathologically reviewed diseases and make specimens of
blood and tissue available to qualified researchers.

IV. To determine sub-groups of these diseases that could be targeted for future biologic,
pathologic, or therapeutic studies.

OUTLINE:

On study data will include presenting symptoms and signs, physical description of the tumor
if it is on the skin, results of metastatic evaluation, stage (if available), blood count,
markers, and the results of viral serologies. Any existing underlying conditions that could
predispose to lymphoma will also be noted. Demographic and outcomes data will be stored and
maintained by the COG Research Data Center. Demographic data will be linked to the specimen
data in the BPC database.

The approach of this study is prospective data collection, including central pathologic
review, relevant biologic studies, submission of material to the Biopathology Center (BPC)
and collection of diagnostic and outcome data. Participants will be registered with a
standard COG registration form for documentation of age, gender, race, date of diagnosis,
initial presentation, initial work-up, and stage according to the standard staging for the
specific disease, initial diagnostic procedure, and institutional diagnosis. Tissue will be
sent according to guidelines in Section 4.0. Follow-up data, including relapse or progression
and vital status will be reported annually for 5 years.

Patients will be followed annually for 5 years and data will be collected including vital
status, evidence/absence of disease, type of treatment received, progression/relapse and
whether the patient continues on study.

Inclusion Criteria:

- Diagnosis of NHL

- Any histology, except for Burkitt or Burkitt-like, diffuse large B-cell,
anaplastic large cell, or lymphoblastic lymphoma

- Primary CNS, primary cutaneous NHL, or lymphoproliferative diseases of any
histology allowed

- Pathological specimen from site not treated within the past 6 months

- Must have specimens available

- At least 6 months since prior chemotherapy irradiation to study lesion

- At least 2 weeks since prior steroids
We found this trial at
120
sites
700 Childrens Drive
Columbus, Ohio 43205
(616) 722-2000
Phone: 614-722-3582
Nationwide Children's Hospital At Nationwide Children’s, we are creating the future of pediatric health care....
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4900 Mueller Boulevard
Austin, Texas 78723
(512) 324-0000
Phone: 512-324-8022
Dell Children's Medical Center of Central Texas Welcome to Dell Children
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2545 Schoenersville Rd
Bethlehem, Pennsylvania 18017
(484) 884-2200
Lehigh Valley Hospital - Muhlenberg At Lehigh Valley Health Network, we continually go the extra...
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1600 7th Avenue
Birmingham, Alabama 35233
(205) 638-9100
Children's Hospital of Alabama Children
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666 Elm Street
Buffalo, New York 14263
(716) 845-2300
Phone: 877-275-7724
Roswell Park Cancer Institute Welcome to Roswell Park Cancer Institute (RPCI), America's first cancer center...
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11100 Euclid Avenue
Cleveland, Ohio 44106
(216) 844-1000
Phone: 216-844-3345
Rainbow Babies and Children's Hospital UH Rainbow Babies & Children’s Hospital is a 244-bed, full-service...
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3533 South Alameda Street
Corpus Christi, Texas 78411
(361) 694-5000
Phone: 361-694-5311
Driscoll Children's Hospital Driscoll Children's Hospital was built because Clara Driscoll's will requested that a...
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7777 Forest Ln # C840
Dallas, Texas 75230
(972) 566-7000
Phone: 972-566-6647
Medical City Dallas Hospital If you have concerns for your health, that of a family...
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1200 Pleasant Street
Des Moines, Iowa 50309
(515) 241-KIDS
Phone: 515-241-6729
Blank Children's Hospital Blank Children's Hospital is completely dedicated to meeting the unique health care...
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1 Hurley Plaza
Flint, Michigan 48503
(810) 262-9000
Phone: 810-762-8057
Hurley Medical Center From its founding in 1908, Hurley Medical Center has devoted itself to...
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9981 S Healthpark Dr # 465
Fort Myers, Florida 33908
239-343-5000
Lee Memorial Health System Our origins can be traced to the Fall of 1916 when...
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3551 Roger Brooke Dr
Fort Sam Houston, Texas 78234
(210) 916-4141
Phone: 210-916-4837
Brooke Army Medical Center Brooke Army Medical Center (BAMC) is the Flagship of Army Medicine!...
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100 Michigan Street Northeast
Grand Rapids, Michigan 49503
616.391.9000
Phone: 616-391-3050
Helen DeVos Children's Hospital at Spectrum Health Helen DeVos Children's Hospital, located in Grand Rapids,...
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282 Washington St
Hartford, Connecticut 06106
(860) 545-9000
Phone: 860-545-9967
Connecticut Children's Medical Center Connecticut Children’s Medical Center is a nationally recognized, 187-bed not-for-profit children’s...
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2500 N State St
Jackson, Mississippi 39216
(601) 984-1000
University of Mississippi Medical Center The University of Mississippi Medical Center, located in Jackson, is...
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2401 Gillham Rd
Kansas City, Missouri 64108
(816) 234-3000
Phone: 816-234-3265
Children's Mercy Hospital Children's Mercy Hospitals and Clinics continues redefining pediatric medicine throughout the Midwest...
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1800 West Charleston Boulevard
Las Vegas, Nevada 89102
(702) 383-2000
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529 West Markham Street
Little Rock, Arkansas 72205
(501) 686-7000
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4650 Sunset Blvd
Los Angeles, California 90027
 (323) 660-2450
Phone: 323-361-2529
Childrens Hospital Los Angeles Children's Hospital Los Angeles is a 501(c)(3) nonprofit hospital for pediatric...
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601 Children's Lane
Norfolk, Virginia 23507
(757) 668-7000
Phone: 757-668-7243
Children's Hospital of The King's Daughters Children
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747 52nd St
Oakland, California 94609
(510) 428-3000
Children's Hospital and Research Center Oakland For nearly 100 years, Children's Hospital & Research Center...
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1717 South Orange Avenue # 100
Orlando, Florida 32806
(407) 650-7000
Phone: 407-650-7230
Nemours Children's Clinic - Orlando Located near downtown Orlando, Nemours Children’s Clinic, Orlando is a...
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5153 North 9th Avenue
Pensacola, Florida 32504
(850) 505-4700
Phone: 850-505-4790
Nemours Children's Clinic - Pensacola Nemours Children’s Clinic, Pensacola serves children and families in northwest...
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530 Northeast Glen Oak Avenue
Peoria, Illinois 61603
(309) 624-4945
Phone: 309-655-4242
Saint Jude Midwest Affiliate The Jim and Trudy Maloof St. Jude Midwest Affiliate Clinic was...
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South 34th Street
Philadelphia, Pennsylvania 19104
 215-590-1000
Phone: 267-425-3010
Children's Hospital of Philadelphia Since its start in 1855 as the nation's first hospital devoted...
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4401 Penn Avenue
Pittsburgh, Pennsylvania 15224
412-692-5325
Phone: 412-692-7056
Children's Hospital of Pittsburgh of UPMC UPMC is one of the leading nonprofit health systems...
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7700 Floyd Curl Dr
San Antonio, Texas 78229
(210) 575-7000
Phone: 210-575-7268
Methodist Children's Hospital of South Texas Methodist Children
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4502 Medical Drive
San Antonio, Texas 78284
(210) 567-7000
Phone: 210-567-7477
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1 Tampa General Cir
Tampa, Florida 33606
(813) 844-7000
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40 Sunshine Cottage Road
Valhalla, New York 10595
(914) 594-4000
Phone: 914-493-7997
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1600 Rockland Road
Wilmington, Delaware 19803
(302) 651-4200
Phone: 302-651-5755
Alfred I. duPont Hospital for Children Nemours began more than 70 years ago with the...
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Asheville, North Carolina 28801
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13123 E 16th Ave
Aurora, Colorado 80045
(720) 777-1234
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2401 W Belvedere Ave
Baltimore, Maryland 21215
(410) 601-9000
Sinai Hospital of Baltimore Sinai Hospital of Baltimore provides a broad array of high-quality, cost-effective...
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401 North Broadway
Baltimore, Maryland 21287
410-955-5000
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489 State St
Bangor, Maine 04401
(207) 973-7000
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8901 Rockville Pike
Bethesda, Maryland 20889
(301) 295-4000
Walter Reed National Military Medical Center The Walter Reed National Military Medical Center is one...
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450 Brookline Ave
Boston, Massachusetts 2215
617-632-3000
Phone: 617-632-4580
Dana-Farber Cancer Institute Since it’s founding in 1947, Dana-Farber has been committed to providing adults...
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55 Fruit St
Boston, Massachusetts 02114
(617) 724-4000
Massachusetts General Hospital Cancer Center An integral part of one of the world
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121 Dekalb Ave
Brooklyn, New York 11205
(718) 250-8000
Phone: 718-250-6074
Brooklyn Hospital Center Welcome to The Brooklyn Hospital Center, dedicated to Keeping Brooklyn healthy and...
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3110 MacCorkle Avenue Southeast
Charleston, West Virginia 25304
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Charlotte, North Carolina 28204
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1200 West Harrison Stree
Chicago, Illinois 60607
(312) 996-4350
Univ of Illinois A major research university in the heart of one of the world's...
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2049 E 100th St
Cleveland, Ohio 44106
(216) 444-2200
Cleveland Clinic Foundation The Cleveland Clinic (formally known as The Cleveland Clinic Foundation) is a...
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Columbia, Missouri 65201
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5 Richland Medical Park Dr
Columbia, South Carolina 29203
(803) 434-7000
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100 North Academy Avenue
Danville, Pennsylvania 17822
570-271-6211
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Dayton, Ohio 45404
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4160 John R St #2122
Detroit, Michigan 48201
(313) 833-1785
Wayne State University/Karmanos Cancer Institute Karmanos is based in southeast Michigan, in midtown Detroit, and...
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22101 Moross Rd
Detroit, Michigan 48236
(313) 343-4000
Saint John Hospital and Medical Center Founded in 1952, St. John Hospital and Medical Center...
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9333 Imperial Highway
Downey, California 90242
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2301 Erwin Rd
Durham, North Carolina 27710
919-684-8111
Duke Univ Med Ctr As a world-class academic and health care system, Duke Medicine strives...
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East Lansing, Michigan 48824
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801 7th Avenue
Fort Worth, Texas 76104
(682) 885-4000
Cook Children's Medical Center Cook Children's Health Care System is a not-for-profit, nationally recognized pediatric...
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30 Prospect Ave
Hackensack, New Jersey 07601
(201) 996-2000
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Hershey, Pennsylvania 17033
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705 Riley Hospital Dr
Indianapolis, Indiana 46202
(317) 944-5000
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Indianapolis, Indiana 46260
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Jacksonville, Florida 32207
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Kansas City, Kansas 66160
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2018 W Clinch Ave
Knoxville, Tennessee 37916
(865) 541-8000
Phone: 865-541-8266
East Tennessee Children's Hospital East Tennessee Children's Hospital is a not-for-profit, private, independent pediatric medical...
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Las Vegas, Nevada 89109
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Las Vegas, Nevada 89144
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601 South Rancho Drive Suite C-26
Las Vegas, Nevada 89106
(702) 384-0013
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1 Medical Center Dr
Lebanon, New Hampshire 03756
 (603) 650-5000
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1 Children's Way
Little Rock, Arkansas 72202
(501) 364-1100
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94 Old Short Hills Road
Livingston, New Jersey 07039
(973) 322-5000
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Marshfield, Wisconsin 54449
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9000 W Wisconsin Ave #270
Milwaukee, Wisconsin 53226
(414) 266-2000
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Morristown, New Jersey 07962
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Nashville, Tennessee 37232
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254 Easton Ave
New Brunswick, New Jersey 08901
(732) 745-8600
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New Orleans, Louisiana 70121
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201 Lyons Ave
Newark, New Jersey 07112
(973) 926-7000
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Oak Lawn, Illinois 60453
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Oakland, California 94611
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940 NE 13th St
Oklahoma City, Oklahoma 73190
(405) 271-6458
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8200 Dodge St
Omaha, Nebraska 68114
(402) 955-5400
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Emile St
Omaha, Nebraska 68198
(402) 559-4000
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13535 Nemours Parkway
Orlando, Florida 32827
(407) 567-4000
Nemours Children's Hospital Nemours Children's Hospital in Orlando brings pediatric specialty care never before offered...
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725 Welch Rd
Palo Alto, California 94304
(650) 497-8000
Lucile Packard Children's Hospital Stanford University Stanford Children's Health is the only network in the...
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Park Ridge, Illinois 60068
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1775 West Dempster Street
Park Ridge, Illinois 60068
(847) 723-2210
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703 Main Street
Paterson, New Jersey 07503
973.754.2000
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Perth, Western Australia
Phone: 011-6189340-8238
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Philadelphia, Pennsylvania 19104
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