aHUS Observational Long Term Follow-Up



Status:Active, not recruiting
Conditions:Gastrointestinal, Hematology
Therapuetic Areas:Gastroenterology, Hematology
Healthy:No
Age Range:Any
Updated:7/27/2016
Start Date:March 2012
End Date:January 2017

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An Observational, Multi-Center, Multi-National, Long Term Follow-Up Study of Atypical Hemolytic Uremic Syndrome (aHUS) Patients Treated With Eculizumab in a Prior Clinical Study

There is growing but limited information on the long term clinical status of aHUS patients
who have previously received or are continuing to receive treatment with eculizumab. This
study is designed to collect clinical data that will provide insight into the long-term
outcomes of patients with aHUS.


Inclusion Criteria:

- aHUS patients who participated in any one of the aHUS-eculizumab clinical studies.

- aHUS patients or legal representative who are able and willing to given written
informed consent for their study information to be collected and retained in a
database.

Exclusion Criteria:
We found this trial at
17
sites
11143 Parkview Plaza Dr # 100
Fort Wayne, Indiana 46845
(260) 484-8830
Fort Wayne Medical Oncology and Hematology Fort Wayne Medical Oncology and Hematology provides state-of-the-art cancer...
1854
mi
from 91732
Fort Wayne, IN
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3533 South Alameda Street
Corpus Christi, Texas 78411
(361) 694-5000
Driscoll Children's Hospital Driscoll Children's Hospital was built because Clara Driscoll's will requested that a...
1295
mi
from 91732
Corpus Christi, TX
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1919
mi
from 91732
Atlanta, GA
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300 Longwood Ave
Boston, Massachusetts 02115
(617) 355-6000
Boston Children's Hospital Boston Children's Hospital is a 395-bed comprehensive center for pediatric health care....
2578
mi
from 91732
Boston, MA
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Bronx, New York 10467
2439
mi
from 91732
Bronx, NY
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Cincinnati, Ohio 45229
1880
mi
from 91732
Cincinnati, OH
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1960
mi
from 91732
Columbus, OH
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Detroit, Michigan 48202
1965
mi
from 91732
Detroit, MI
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1920
mi
from 91732
Dunwoody, GA
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1853
mi
from 91732
Fort Wayne, IN
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Hawthorne, New York
2442
mi
from 91732
Hawthorne, NY
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1357
mi
from 91732
Houston, TX
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New York, New York 10021
2434
mi
from 91732
New York, NY
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North Tce. Adelaide, 5000
8190
mi
from 91732
North Tce. Adelaide,
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Osh Kosh, Wisconsin
1696
mi
from 91732
Osh Kosh, WI
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4800 Sand Point Way NE
Seattle, Washington 98105
(206) 987-2000
Seattle Children's Hospital Seattle Children’s Hospital specializes in meeting the unique physical, emotional and developmental...
964
mi
from 91732
Seattle, WA
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101 W 8th Ave
Spokane, Washington 99204
(509) 474-3131
Providence Sacred Heart Medical Center & Children's Hospital When Mother Joseph and the Sisters of...
939
mi
from 91732
Spokane, WA
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