Improving Therapeutic Patient Education for Atopic Dermatitis: Evaluation of a Parent Handbook
| Status: | Recruiting |
|---|---|
| Conditions: | Dermatology, Dermatology, Dermatology |
| Therapuetic Areas: | Dermatology / Plastic Surgery |
| Healthy: | No |
| Age Range: | Any - 16 |
| Updated: | 3/15/2019 |
| Start Date: | February 26, 2019 |
| End Date: | December 2019 |
| Contact: | Felice Chan |
| Email: | felice.chan@childrenshospital.org |
| Phone: | 617-355-4349 |
The objective of this research is to evaluate the effectiveness of an educational handbook
for parents of children with atopic dermatitis (AD) in improving clinical outcomes for
pediatric patients with AD and their parents. The handbook was developed by an
interdisciplinary team of healthcare providers to facilitate therapeutic patient education as
a routine component of care for pediatric patients with atopic dermatitis (AD). Patient
education is an important element of practice management guidelines for AD, particularly
given complex treatment plans and high rates of non-adherence in this population. Parents of
children with AD will be randomized into either the handbook arm (handbook provided as an
adjunct to standard AD management with a healthcare provider at Boston Children's Hospital)
or the control arm (standard management alone). Participants will complete study measures at
two time points: baseline (prior to a clinic visit appointment for AD care at Boston
Children's Hospital), and 3-month follow-up. Data will be analyzed for change on study
outcome measures (AD symptoms, AD severity, quality of life) and satisfaction with the
handbook.
for parents of children with atopic dermatitis (AD) in improving clinical outcomes for
pediatric patients with AD and their parents. The handbook was developed by an
interdisciplinary team of healthcare providers to facilitate therapeutic patient education as
a routine component of care for pediatric patients with atopic dermatitis (AD). Patient
education is an important element of practice management guidelines for AD, particularly
given complex treatment plans and high rates of non-adherence in this population. Parents of
children with AD will be randomized into either the handbook arm (handbook provided as an
adjunct to standard AD management with a healthcare provider at Boston Children's Hospital)
or the control arm (standard management alone). Participants will complete study measures at
two time points: baseline (prior to a clinic visit appointment for AD care at Boston
Children's Hospital), and 3-month follow-up. Data will be analyzed for change on study
outcome measures (AD symptoms, AD severity, quality of life) and satisfaction with the
handbook.
Inclusion Criteria:
- Diagnosis of atopic dermatitis
- Scheduled for clinic visit for evaluation/management of atopic dermatitis at Boston
Children's Hospital
Exclusion Criteria:
- Parent is Spanish speaking
- Parent is foster parent
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