Clinical Characteristics and Associations of the "Good Fontan" Patient
| Status: | Recruiting |
|---|---|
| Conditions: | Peripheral Vascular Disease, Cardiology |
| Therapuetic Areas: | Cardiology / Vascular Diseases |
| Healthy: | No |
| Age Range: | 10 - 60 |
| Updated: | 4/17/2018 |
| Start Date: | March 5, 2018 |
| End Date: | March 2026 |
| Contact: | Rahul Rathod, MD |
| Email: | rahul.rathod@childrens.harvard.edu |
| Phone: | 617-355-4890 |
This study aims to determine what are some of the clinical characteristics and associations
of Fontan patients who are doing well, as well as how accurate cardiology providers are at
predicting the likelihood of future adverse event in their Fontan patients.
of Fontan patients who are doing well, as well as how accurate cardiology providers are at
predicting the likelihood of future adverse event in their Fontan patients.
This is a multi-center prospective study that involves collecting data from patients as well
as their cardiology providers in order to determine whether there is correlation between
patient-reported quality of life assessments and clinician-identified assessments of their
patients. The study also involves collecting data from the medical records of participating
patients and entering it into our study database.
as their cardiology providers in order to determine whether there is correlation between
patient-reported quality of life assessments and clinician-identified assessments of their
patients. The study also involves collecting data from the medical records of participating
patients and entering it into our study database.
Inclusion Criteria:
- Extracardiac or Lateral Funnel Fontan
Exclusion Criteria:
- Currently being evaluated for or listed for cardiac transplant
- Underwent Fontan revision or conversion
- Currently pregnant
We found this trial at
1
site
300 Longwood Ave
Boston, Massachusetts 02115
Boston, Massachusetts 02115
(617) 355-6000
Phone: 617-355-4890
Boston Children's Hospital Boston Children's Hospital is a 395-bed comprehensive center for pediatric health care....
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