The Dementia Symptom Management at Home Program Hospice Edition
| Status: | Recruiting |
|---|---|
| Conditions: | Neurology |
| Therapuetic Areas: | Neurology |
| Healthy: | No |
| Age Range: | 18 - Any |
| Updated: | 9/29/2018 |
| Start Date: | August 1, 2018 |
| End Date: | January 2020 |
| Contact: | Tessa Manwaring Jones |
| Email: | tessajonesis@gmail.com |
| Phone: | (917) 951 -5588 |
A Cluster Randomized Controlled Trial (RCT) of the Dementia Symptom Management (DSM) at Home Program Hospice Edition
Alzheimer's Disease and Related Disorders (dementia) poses a significant challenge to our
public health. While many persons with dementia are cared for by friends and family in the
community with the assistance of home healthcare and hospice, most clinicians and agencies
are ill prepared to care for this population and therefore have difficulty assisting patients
and caregivers in maintaining quality of life leading to adverse patient outcomes, increased
caregiver stress and burnout, and healthcare utilization. This study will utilize a cluster
randomized controlled design with 6 care teams at a single study site to examine the ability
of a multi-component evidence-based practice hospice care quality improvement program for
registered nurses, social workers and chaplains to improve the quality of life and reduce
healthcare utilization for persons with dementia and their informal caregiver.
public health. While many persons with dementia are cared for by friends and family in the
community with the assistance of home healthcare and hospice, most clinicians and agencies
are ill prepared to care for this population and therefore have difficulty assisting patients
and caregivers in maintaining quality of life leading to adverse patient outcomes, increased
caregiver stress and burnout, and healthcare utilization. This study will utilize a cluster
randomized controlled design with 6 care teams at a single study site to examine the ability
of a multi-component evidence-based practice hospice care quality improvement program for
registered nurses, social workers and chaplains to improve the quality of life and reduce
healthcare utilization for persons with dementia and their informal caregiver.
Inclusion Criteria:
- PWD over the age of 65
- Admitted to MJHS hospice agency
- The patient and family caregiver speak English and/or Spanish.
- The informal caregiver is ≥18 years of age and spends at least 8 hours per week with
the patient.
- Patients who score ≥6 on the Quick Dementia Rating Scale (at least mild impairment).
Exclusion Criteria:
- Patients with a separate Axis 1 diagnosis other than forms of dementia, depression or
anxiety.
- PWD residing in assisted living facilities, nursing homes or board and care homes
- PWD solely receiving infusion or home health aide services.
We found this trial at
1
site
550 1st Ave
New York, New York 10016
New York, New York 10016
(212) 263-7300
Principal Investigator: Abraham Brody, PhD
Phone: 212-992-7341
New York University School of Medicine NYU School of Medicine has a proud history that...
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