MyHeartBaby: An Initial Evaluation of the MyHeartBaby Psychosocial Telemedicine Program
| Status: | Recruiting |
|---|---|
| Conditions: | Peripheral Vascular Disease, Cardiology, Cardiology |
| Therapuetic Areas: | Cardiology / Vascular Diseases |
| Healthy: | No |
| Age Range: | 18 - Any |
| Updated: | 3/9/2017 |
| Start Date: | July 2015 |
| End Date: | June 1, 2017 |
| Contact: | Brandon Aylward |
| Email: | brandon.s.aylward@emory.edu |
| Phone: | 404-727-4421 |
An Initial Evaluation of the MyHeartBaby Psychosocial Telemedicine Program
This study will conduct an initial clinical evaluation of this support program to examine
its impact on reducing caregiver stress, increasing confidence in daily feeding, and
improving weight-for-age growth percentiles in infants with Congenital Heart Disease (CHD).
its impact on reducing caregiver stress, increasing confidence in daily feeding, and
improving weight-for-age growth percentiles in infants with Congenital Heart Disease (CHD).
Caregivers of infants with CHD are at high-risk of anxiety and distress due to the complex
daily caregiving demands. Previous research has demonstrated decreased parental stress and
more optimal infant developmental outcomes with a psychosocial intervention delivered to
caregivers of infants with CHD prior to hospital discharge as well as reduced healthcare use
in caregivers who received medical video-consultations during the interstage surgical
palliation period. This study will implement a telemedicine intervention program
(MyHeartBaby) to support caregivers remotely in the daily care and adjustment to having an
infant with chronic medical needs. The program is delivered via video chat over the Internet
and caregivers will complete questionnaires about general family information, stress, and
feeding their infant.
daily caregiving demands. Previous research has demonstrated decreased parental stress and
more optimal infant developmental outcomes with a psychosocial intervention delivered to
caregivers of infants with CHD prior to hospital discharge as well as reduced healthcare use
in caregivers who received medical video-consultations during the interstage surgical
palliation period. This study will implement a telemedicine intervention program
(MyHeartBaby) to support caregivers remotely in the daily care and adjustment to having an
infant with chronic medical needs. The program is delivered via video chat over the Internet
and caregivers will complete questionnaires about general family information, stress, and
feeding their infant.
Inclusion Criteria:
- Caregiver's infant is less than 45 days of age at time of study enrollment.
- Caregiver of infant with high-risk, shunt dependent physiology (one or two-ventricle
circulation) having just received neonatal surgery for CHD.
- English is a primary language for caregiver of infant.
Exclusion Criteria:
- Caregiver's infant is greater than 45 days of age at time of study enrollment.
- Not a caregiver of infant with high-risk, shunt dependent physiology having just
received neonatal surgery for CHD.
- English is not a primary language for caregiver of infant.
We found this trial at
1
site
1405 Clifton Road NE
Atlanta, Georgia 30322
Atlanta, Georgia 30322
404-785-6000
Principal Investigator: Brandon Aylward, PhD
Children's Healthcare of Atlanta Whether treating a toddler in an emergency or supporting a teen...
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