Protocol For Collecting Long-Term Follow-Up Data On Recipients of Bone Marrow and Blood Stem Cell Transplant

The purpose of this protocol is to provide ongoing data collection and review of long-term
outcome and late effects in a large cohort of St. Jude Children's Research Hospital
autologous and allogeneic hematopoietic stem cell recipients. Central coordination of
clinical and psychosocial late effects monitoring and reporting can facilitate timely
communication about life-threatening or unanticipated clinical outcomes as well as
significant psychological, social and behavioral sequelae effects on the recipient and their
family members. The resultant data may enable researchers in their development of current
clinical and psychosocial studies, as well as monitoring predisposed survivors who may
benefit from preventive or corrective interventions. Physicians and researchers may be able
to learn how to identify these problems earlier, to take better care of these problems, or to
implement preventive measures for future transplant recipients

Inclusion Criteria:

- St. Jude patients actively monitored in the BMT-AFU clinic after receiving HSC
transplant for a malignant or non-malignant condition.

- St. Jude alumnus who has received a hematopoietic stem cell transplant for a malignant
or non-malignant condition and is monitored by the Tumor Registry