Patient Portal and Navigation Program in Providing Information for Asian American Cancer Patients



Status:Not yet recruiting
Conditions:Lung Cancer, Colorectal Cancer, Liver Cancer
Therapuetic Areas:Oncology
Healthy:No
Age Range:21 - Any
Updated:3/10/2019
Start Date:March 1, 2019
End Date:June 30, 2020
Contact:Laura Allen
Email:Laura.Allen@ucsf.edu
Phone:415-514-3423

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The Patient Cancer OUtreach, Navigation, Technology, and Support (Patient COUNTS) Project: Addressing Care for Asian Americans With Cancer

This phase I/II trial studies how well patient portal and navigation program work in
providing information for Asian American cancer patients. Patient portal and navigation
program may help to improve the care provided to Asian American cancer patients.This study is
offered in the following languages in addition to English: Chinese (Cantonese or Mandarin)
and Vietnamese.

PRIMARY OBJECTIVES:

I. Identify Asian American adults newly diagnosed with colorectal, liver, or lung cancer
using a population-based cancer registry.

II. Conduct outreach to these patients to let them know about the availability of information
on these cancers, the Patient Cancer OUtreach, Navigation, Technology and Support (COUNTS)
web portal, and the Patient COUNTS patient navigation program.

III. Provide patient navigation either virtually or in-person.

OUTLINE:

Patients attend focus groups to help develop patient portal and navigation program. Patients
use in-person navigation program. In phase II, patients use an online portal to access
navigation program and may choose to have online/?virtual? navigation support or in-person
navigation support. Patients also complete data collection and surveys over 15 minutes via
web portal at baseline, 3 months, and 6 months and user experience survey at end of program
participation.

Inclusion Criteria:

- FOR INTERVIEWS AND FOCUS GROUPS: Cancer patients: Self-identifies as Asian American,
lives in San Francisco, speaks English, Mandarin, Cantonese, or Vietnamese, has a
history of cancer of any kind

- FOR INTERVIEWS AND FOCUS GROUPS: Caregivers: any person who has provided care to an
Asian American cancer patient

- FOR INTERVIEWS AND FOCUS GROUPS: Health professionals: physicians and other health
professionals who provide care to Asian American patients with cancer

- FOR PILOT AND FULL IMPLEMENTATION: Self-identifies as Asian American, lives in San
Francisco, speaks English, Mandarin, Cantonese, or Vietnamese, has stage I-III
colorectal, lung, or liver cancer, has not yet undergone treatment

- FOR PILOT AND FULL IMPLEMENTATION: Is willing to stay in the study for six months

Exclusion Criteria:

- Any medical or psychological conditions precluding informed consent
We found this trial at
2
sites
San Francisco, California 94115
Principal Investigator: Tung T. Nguyen
Phone: 415-514-8659
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San Francisco, California 94158
Principal Investigator: Tung T. Nguyen
Phone: 415-514-8659
?
mi
from
San Francisco, CA
Click here to add this to my saved trials