MyPaTH Story Booth



Status:Recruiting
Healthy:No
Age Range:18 - 99
Updated:10/12/2018
Start Date:March 2016
End Date:March 2019
Contact:Barbara A Postol, PhD
Email:postolba2@upmc.edu
Phone:412-864-3025

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The MyPaTH Story Booth will use an (audio) "document" approach to elicit in depth
experiential knowledge or perspectives from patients and caregivers by recording their
personal stories.

Modeled after the Storycorps project and healthtalk.org, MyPaTH Story Booth will use an
(audio) "document" approach to elicit in depth experiential knowledge or perspectives from
patients and caregivers by recording their personal stories. Narratives provide a powerful
framework for understanding patient problems and the larger process of illness, coping, and
seeking health care. Narratives can provide meaning, context, and perspective for patients'
situations and insight into failures in health care delivery, particularly for marginalized
patients. MyPaTH Story Booth will provide simple instructions for how participants can work
with an interview partner (e.g., a family member or friend) to record their story. MyPath
Story Booth will be launched sequentially at each PaTH site to establish an initial archive
of patient and caregiver narratives. Individuals who record narratives will be asked to
provide limited "tags" to populate a searchable database (e.g., their age, sex, interview
topic). The audio booth and procedures will also be made available to PaTH affiliated
researchers who wish to augment the narrative database with narratives of patient partners
from specific study populations.

Inclusion Criteria:

- Over the age of 18 and the ability to read and understand English

Exclusion Criteria:

- Researchers will exclude individuals who are not 18 years of age or older and/or do
not provide informed consent
We found this trial at
1
site
4200 Fifth Ave
Pittsburgh, Pennsylvania 15260
(412) 624-4141
Principal Investigator: Kathleen M McTigue, MD, MS, MPH
Phone: 412-864-3025
University of Pittsburgh The University of Pittsburgh is a state-related research university, founded as the...
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