Clinical Procedures to Support Research



Status:Recruiting
Conditions:Neurology, Neurology, Neurology, Neurology, Neurology, Neurology, Neurology, Neurology
Therapuetic Areas:Neurology
Healthy:No
Age Range:18 - Any
Updated:1/11/2019
Start Date:February 15, 2018
End Date:January 2021
Contact:Michael Benatar, MBChB, MS, DPhil
Email:projectcreate@miami.edu
Phone:1-844-837-1031

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Clinical Procedures to Support Research (CAPTURE)

The purpose of the Clinical Procedures To Support Research (CAPTURE) study is to utilize
information collected in the medical record to learn more about a disease called amyotrophic
lateral sclerosis (ALS) and related disorders.

The study will consent patients with ALS or related disorders that are receiving care at a
clinical center in the CReATe consortium that uses Epic as its electronic health record (EHR)
system. The study aims to systematically gather a clinical dataset through the EHR using a
standardized approach to characterize the natural history of ALS and related diseases.

Inclusion Criteria:

- Diagnosis of ALS or a related disorder (e.g. primary lateral sclerosis, progressive
muscular atrophy).

- Receiving care at a clinical center that uses Epic as its EHR.

- Able and willing to provide informed consent (or informed consent obtainable from a
designated proxy).

Exclusion Criteria:

- Inability to understand English and/or Spanish
We found this trial at
2
sites
Miami, Florida 33124
(305) 284-2211
Principal Investigator: Michael Benatar, MBChB, MS, DPhil
Phone: 305-243-8928
University of Miami A private research university with more than 15,000 students from around the...
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45 Castro Street
San Francisco, California 94114
(415) 600-6000
Principal Investigator: Jonathan Katz, MD
Phone: 415-600-1368
California Pacific Medical Center California Pacific Medical Center is one of the largest private, not-for-profit,...
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San Francisco, CA
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