Clinical Procedures to Support Research
| Status: | Recruiting |
|---|---|
| Conditions: | Neurology, Neurology, Neurology, Neurology, Neurology, Neurology, Neurology, Neurology |
| Therapuetic Areas: | Neurology |
| Healthy: | No |
| Age Range: | 18 - Any |
| Updated: | 1/11/2019 |
| Start Date: | February 15, 2018 |
| End Date: | January 2021 |
| Contact: | Michael Benatar, MBChB, MS, DPhil |
| Email: | projectcreate@miami.edu |
| Phone: | 1-844-837-1031 |
Clinical Procedures to Support Research (CAPTURE)
The purpose of the Clinical Procedures To Support Research (CAPTURE) study is to utilize
information collected in the medical record to learn more about a disease called amyotrophic
lateral sclerosis (ALS) and related disorders.
information collected in the medical record to learn more about a disease called amyotrophic
lateral sclerosis (ALS) and related disorders.
The study will consent patients with ALS or related disorders that are receiving care at a
clinical center in the CReATe consortium that uses Epic as its electronic health record (EHR)
system. The study aims to systematically gather a clinical dataset through the EHR using a
standardized approach to characterize the natural history of ALS and related diseases.
clinical center in the CReATe consortium that uses Epic as its electronic health record (EHR)
system. The study aims to systematically gather a clinical dataset through the EHR using a
standardized approach to characterize the natural history of ALS and related diseases.
Inclusion Criteria:
- Diagnosis of ALS or a related disorder (e.g. primary lateral sclerosis, progressive
muscular atrophy).
- Receiving care at a clinical center that uses Epic as its EHR.
- Able and willing to provide informed consent (or informed consent obtainable from a
designated proxy).
Exclusion Criteria:
- Inability to understand English and/or Spanish
We found this trial at
2
sites
45 Castro Street
San Francisco, California 94114
San Francisco, California 94114
(415) 600-6000
Principal Investigator: Jonathan Katz, MD
Phone: 415-600-1368
California Pacific Medical Center California Pacific Medical Center is one of the largest private, not-for-profit,...
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Miami, Florida 33124
(305) 284-2211
Principal Investigator: Michael Benatar, MBChB, MS, DPhil
Phone: 305-243-8928
University of Miami A private research university with more than 15,000 students from around the...
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