A National Registry For Patients With Hidradenitis Suppurativa



Status:Recruiting
Conditions:Dermatology, Dermatology
Therapuetic Areas:Dermatology / Plastic Surgery
Healthy:No
Age Range:18 - 99
Updated:3/21/2019
Start Date:August 2015
End Date:August 2020
Contact:Steve R Cohen, MD, MPH
Email:srcohen@montefiore.org

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Development and Maintenance of a National Registry For Patients With Hidradenitis Suppurativa

The goal of this study is to get a better understanding of the skin condition, Hidradenitis
Suppurativa, and to find out how the disease affects quality of life. The investigators hope
this information will help improve treatment for this skin condition.

The goal of this study is to get a better understanding of the skin condition, Hidradenitis
Suppurativa, and to find out how the disease affects quality of life. The investigators will
utilize a compilation of validated questionnaires including the Beck Depression Inventory
form, Dermatology Life Quality Index (DLQI), Skindex, SF-36 health survey, the Quality of
Life Enjoyment and Satisfaction Questionnaire- short form (Q-LES-Q-SF) and the
Employment/Productivity Health Economic Questionnaire as well as other relevant clinical
data. The investigators will additionally collect a modified Hidradenitis Suppurativa Lesion,
Area, and Severity Index (HS-LASI) (or other appropriate disease severity score as determined
by the team) from the physician of each enrollee. The investigators hope this information
will help improve treatment for this skin condition.

Inclusion Criteria:

- Subjects 18-99 years of age who have a diagnosis of Hidradenitis Suppurativa (as
deemed by a physician at the Montefiore Hidradenitis Suppurativa Treatment Center)

Exclusion Criteria:

- Patients without a diagnosis of Hidradenitis Suppurativa or under the age of 18

- Patients who are unable to answer given questions within the 6 surveys

- Patient who are unable to be clinically evaluated by a Montefiore physician
We found this trial at
1
site
3550 Jerome Avenue
Bronx, New York 10467
(718) 920-4321
Phone: 718-920-8470
Montefiore Medical Center As the academic medical center and University Hospital for Albert Einstein College...
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Bronx, NY
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