Longitudinal Study of Neurodegenerative Disorders
| Status: | Recruiting |
|---|---|
| Conditions: | Osteoporosis, Other Indications, Other Indications, Other Indications, Neurology, Neurology, Neurology, Neurology, Orthopedic, Hematology, Metabolic, Metabolic |
| Therapuetic Areas: | Hematology, Neurology, Pharmacology / Toxicology, Rheumatology, Orthopedics / Podiatry, Other |
| Healthy: | No |
| Age Range: | Any |
| Updated: | 12/7/2018 |
| Start Date: | January 11, 2012 |
| End Date: | January 2035 |
| Contact: | Jodi Martin |
| Email: | sausjl@upmc.edu |
| Phone: | 412-692-6351 |
The purpose of this study is to understand the course of rare genetic disorders that affect
the brain. This data is being analyzed to gain a better understanding of the progression of
the rare neurodegenerative disorders and the effects of interventions.
the brain. This data is being analyzed to gain a better understanding of the progression of
the rare neurodegenerative disorders and the effects of interventions.
Patients would be evaluated by a multidisciplinary team at specific time points every 3
months the first year, every 6 months the second year and once a year thereafter.
months the first year, every 6 months the second year and once a year thereafter.
Inclusion Criteria:
- Any patient with a genetic neurodegenerative disorder
Exclusion Criteria:
We found this trial at
1
site
4401 Penn Avenue
Pittsburgh, Pennsylvania 15224
Pittsburgh, Pennsylvania 15224
Principal Investigator: Maria L Escolar, MD,MS
Phone: 412-692-6351
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