Assessing the Acceptability of the Use of a Mobile Health App Among Young Adult Female Survivors of Childhood Cancer



Status:Recruiting
Healthy:No
Age Range:18 - 30
Updated:8/8/2018
Start Date:September 1, 2017
End Date:September 2019
Contact:Kathy Ruble, RN, PhD
Email:rubleka@jhmi.edu
Phone:410-614-5062

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Assessing the Acceptability of the Use of a Mobile Health App Among Young Adult Female Survivors of Childhood Cancer: A Feasibility Study

The purpose of this research study is to understand if a mobile app is useful to assist young
adult female survivors of childhood cancer in the self-management of survivorship-related
needs.

Survivorship related needs include managing lingering symptoms from treatment, how to keep a
healthy lifestyle, social and medical issues, as well as other needs. The mobile health app
that will be used in this study is the Health Storylines TM app developed by Self Care
Catalysts Inc. The app can be used for an unlimited amount of time over nine months, which is
how long the study will be conducted. The use of the Health Storylines TM app in this study
is investigational.

Participation in this study starts with setting up a study specific profile on the app and
entering information including email address, age, ethnicity/race, cancer diagnosis, as well
as other optional information for the profile (example health goals or current health
conditions). Participants will then be prompted by the app to complete three questionnaires
about their ability to self-manage their survivorship-related needs, their perception of
their survivorship-related illness symptoms and perceived health related quality of life.
They will be prompted on the app to complete these questionnaires again at the 3, 6 and 9
month intervals of using the app. It will take about 20 minutes to complete the
questionnaires at each measurement time. The only additional information that will be
reported from the app for the study is the amount of time and features of programs accessed
during the study period.

Inclusion criteria are females who:

- Have been diagnosed with cancer before the age of 18 years

- Are between the ages 18 to 30 years

- Have been off treatment for at least six months

- Have a personal smart device to use for the app

Exclusion Criteria:

- None
We found this trial at
1
site
1800 Orleans St.
Baltimore, Maryland 21287
410-955-5000
Phone: 410-614-5062
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