CAREgiver Study for Patients Undergoing HSCT

During the first phase of this study, the investigators enrolled caregivers of patients
undergoing hematopoietic stem cell transplantation (HSCT) into a descriptive study. The
investigators used quantitative and qualitative measures to describe the caregivers
self-efficacy, distress, and coping style, and solicit their opinions about how to improve
our supportive care for caregivers.

Informed by those data, the investigators now will study the effectiveness of the supportive
intervention.

The long-term goal of this research is to develop a pragmatic, replicable intervention that
supports caregivers and promotes the health and well-being of the caregiver-HSCT patient
dyad.

Inclusion Criteria:

- Providing informal, unpaid care for a person who is 18 years of age or older and is
scheduled to receive an allogeneic or autologous HSCT within the next three months.

- The caregiver's loved one ("patient") undergoing the transplant will be asked to
enroll in the study to provide data regarding quality of life and symptom burden and
to allow access of the medical record to ascertain healthcare utilization data.
(Caregivers will not be excluded from the study if the patient declines to enroll.)

Exclusion Criteria:

- Under the age of 18 for either caregiver or patient.