Bridging Hemophilia B Experiences, Results and Opportunities Into Solutions (B-HERO-S)
Status: | Completed |
---|---|
Conditions: | Hematology |
Therapuetic Areas: | Hematology |
Healthy: | No |
Age Range: | 18 - Any |
Updated: | 4/21/2016 |
Start Date: | September 2015 |
End Date: | November 2015 |
This study is conducted in the United States of America (USA). Tha aim of this study is
bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S).
bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S).
Inclusion Criteria:
- Adults aged below or equal to 18 years with hemophilia B (any severity, with or
without inhibitors)
- Caregivers of children currently aged below 18 years with hemophilia B (any severity,
with or without inhibitors)
- Subjects must have access to the internet, either at home or at a location convenient
to them
- Provision of informed consent before the start of any survey-related activities
Exclusion Criteria:
- Inability to understand and comply with written instructions in English
- Previous completion of the B-HERO-S study with receipt of compensation
- Mental incapacity, unwillingness or language barriers precluding adequate
understanding or cooperation
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