EXPLORE: A Natural History Study of Acute Hepatic Porphyria (AHP)



Status:Recruiting
Conditions:Gastrointestinal
Therapuetic Areas:Gastroenterology
Healthy:No
Age Range:12 - Any
Updated:3/14/2019
Start Date:August 2014
End Date:December 2020
Contact:Alnylam Clinical Trials Hotline Call for Complete Site List
Phone:617-575-7400

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A Natural History Study of Acute Hepatic Porphyria (AHP) Patients With Recurrent Attacks

The purpose of this study is to characterize the natural history and clinical management of
Acute Hepatic Porphyria (AHP) patients with recurring attacks.


Inclusion Criteria:

- Males and females aged >/= 12 years

- Diagnosis of AHP [acute intermittent porphyria (AIP), variegate porphyria (VP),
hereditary coproporphyria (HCP) and aminolevulinic acid dehydratase (ALAD) deficient
porphyria (ADP)]

- Porphyria attacks in the past 12 months or receiving treatment to prevent attacks

- Willing to provide written informed consent, medical records, and to comply with study
requirements

Exclusion Criteria:

• Current participation in a clinical trial of an investigational product
We found this trial at
10
sites
1700 Abbey Place
Charlotte, North Carolina 28209
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Charlotte, NC
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Ann Arbor, Michigan 48109
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Ann Arbor, MI
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Camperdown, New South Wales
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Camperdown,
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Galveston, Texas
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Galveston, TX
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Miami, Florida
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Miami, FL
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New York, New York 10032
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New York, NY
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Philadelphia, Pennsylvania 19104
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Philadelphia, PA
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Salt Lake City, Utah
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Salt Lake City, UT
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San Francisco, California
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San Francisco, CA
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1901 South Hawthorne Road
Winston-Salem, North Carolina 27103
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from
Winston-Salem, NC
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