Discharge to Home and Chronic Illness Care Pilot
| Status: | Completed |
|---|---|
| Healthy: | No |
| Age Range: | 18 - 90 |
| Updated: | 3/9/2019 |
| Start Date: | June 2014 |
| End Date: | October 2018 |
The purpose of this study is to address a gap in knowledge needed for care of children with
solid organ transplantation (SOT) and their parents by combining mHealth technology with an
individualized family centered self-management intervention (referred to as myFAMI). This
study is critical to the increased understanding of hospital to home transition and family
management at home with the potential to transform the way clinicians approach the care of
complex chronic illness children and families.
solid organ transplantation (SOT) and their parents by combining mHealth technology with an
individualized family centered self-management intervention (referred to as myFAMI). This
study is critical to the increased understanding of hospital to home transition and family
management at home with the potential to transform the way clinicians approach the care of
complex chronic illness children and families.
Inclusion Criteria:
- parent's child has undergone a heart, kidney, or liver transplant and is being
discharged home from the hospital
- the parent is English speaking (to date the tools being used have been validated for
English participants only)
- parent is 18 years of age or older
- patient is 17 years of age and younger.
Exclusion Criteria:
- presence of significant communication or cognitive impairment on the part of the
parent that would preclude completion of questionnaires based on self-report
- parent and child has experienced the discharge to home transition from a previous
transplant.
We found this trial at
1
site
9000 W Wisconsin Ave #270
Milwaukee, Wisconsin 53226
Milwaukee, Wisconsin 53226
(414) 266-2000
Phone: 414-266-3944
Children's Hospital of Wisconsin Nothing matters more than our children. At Children's Hospital of Wisconsin,...
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