Health-related Quality of Life in Rare Kidney Stone



Status:Recruiting
Conditions:Other Indications, Nephrology, Nephrology, Nephrology, Urology
Therapuetic Areas:Nephrology / Urology, Other
Healthy:No
Age Range:5 - Any
Updated:10/26/2018
Start Date:August 2013
End Date:July 2019
Contact:Frank Modersitzki, MPH
Email:Frank.Modersitzki@nyumc.org
Phone:212-686-7500

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Assessment of Health-related Quality of Life in Rare Kidney Stone Formers in the Rare Kidney Stone Consortium

Assessment of Health-related Quality of Life in Rare Kidney Stone Formers in the Rare Kidney
Stone Consortium

The purpose of this study is to learn about Health-related Quality Of Life (HRQoL) in
patients enrolled in the Rare Kidney Stone Consortium (RKSC) registries. Quality of life
studies look at different aspects of both physical and mental components of people's lives.
HRQoL data for people affected by kidney stones are not currently available for people
followed over time.

Inclusion Criteria:

- Qualify to participate in one of the Rare Kidney Stone Registries.

- Be at least 5 years old (for SF-10)

- Are able to communicate using the English language

- Consent to participate in the study (or "assent" if under 18 years old)

- Have internet access with an email account or a valid home address

Exclusion Criteria:

None, if inclusion criteria are met
We found this trial at
3
sites
Rochester, Minnesota 55905
Principal Investigator: Dawn S Milliner, MD
Phone: 800-270-4637
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New York, New York
Principal Investigator: David S Goldfarb, MD
Phone: 212-686-7500
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New York, NY
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Reykjavik,
Principal Investigator: Vidar Edvardsson, MD
Phone: 354-824-5227
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Reykjavik,
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