Home Parenteral Nutrition (HPN) Families' Mobile Distance Connections to Care Research
| Status: | Active, not recruiting |
|---|---|
| Conditions: | Food Studies, Gastrointestinal, Nephrology |
| Therapuetic Areas: | Gastroenterology, Nephrology / Urology, Pharmacology / Toxicology |
| Healthy: | No |
| Age Range: | 13 - Any |
| Updated: | 4/21/2016 |
| Start Date: | August 2012 |
| End Date: | December 2016 |
Mobile Technologies Assisting Patients & Family Caregivers in Healthy Living
The purpose of this study is to test Mobile Technologies in Assisting Patients & Family
Caregivers in Healthy Living and complex home care by connecting to information and
professionals from a distance.
Caregivers in Healthy Living and complex home care by connecting to information and
professionals from a distance.
HPN (Home Parenteral Nutrition) families with TPN (Total Parenteral Nutrition) users are
typically geographically distant from one another (peers) as well as professional providers.
Real-time mobile access to health related information, peer and professional support will be
tested in this study.
typically geographically distant from one another (peers) as well as professional providers.
Real-time mobile access to health related information, peer and professional support will be
tested in this study.
Inclusion Criteria:
- 13 years or older total parenteral nutrition (TPN) patients/users and family
members/caregivers (defined as those individuals involved in daily home HPN care)
- TPN users (also called HPN users) must be receiving intravenous nutrition for a
non-malignant short bowel disorder
- Read, write, speak English and provide informed consent
- Be able to participate in group clinic visits
Exclusion Criteria:
- enteral nutrition dependency only
- less than 13 years of age
- 13 through 17 years of age without parental consent
- currently enrolled in an intervention study or HPN management program
- severe cognitive impairment
- disability disorders (e.g. blindness which cannot be accommodated for active
participation in the group clinics
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