Bronchiectasis and NTM Research Registry
| Status: | Recruiting |
|---|---|
| Conditions: | Infectious Disease, Pulmonary |
| Therapuetic Areas: | Immunology / Infectious Diseases, Pulmonary / Respiratory Diseases |
| Healthy: | No |
| Age Range: | 18 - 120 |
| Updated: | 2/2/2019 |
| Start Date: | January 2008 |
| End Date: | December 2050 |
| Contact: | Elisha Malanga |
| Phone: | 1-866-731-2673 |
The Bronchiectasis Research Registry is a consolidated database of non-cystic fibrosis
(non-CF) Bronchiectasis and Nontuberculosis Mycobacteria (NTM) patients from multiple
clinical institutions.
(non-CF) Bronchiectasis and Nontuberculosis Mycobacteria (NTM) patients from multiple
clinical institutions.
The Bronchiectasis Research Registry is a consolidated database of non-cystic fibrosis
(non-CF) Bronchiectasis and Nontuberculosis Mycobacteria (NTM) patients from multiple
clinical institutions. The goal of the Bronchiectasis Research Registry is to support
collaborative research and assist in the planning of multi-center clinical trials for the
treatment of NTM and non-CF Bronchiectasis, a progressive, non-curable disease of the lungs,
which afflicts thousands of patients. The Registry will also be used to provide better
insight into the study of the different types of Bronchiectasis, as well as the
pathophysiology of the disorder. In 2012, in collaboration with NTM Info and Research, Inc
(NTMir) and the consortium members, the COPD Foundation expanded the Bronchiectasis Research
Registry to enroll patients with "non tuberculous mycobacteria (NTM) only". Prior to this
time, the registry included individuals with Bronchiectasis, with or without NTM.
(non-CF) Bronchiectasis and Nontuberculosis Mycobacteria (NTM) patients from multiple
clinical institutions. The goal of the Bronchiectasis Research Registry is to support
collaborative research and assist in the planning of multi-center clinical trials for the
treatment of NTM and non-CF Bronchiectasis, a progressive, non-curable disease of the lungs,
which afflicts thousands of patients. The Registry will also be used to provide better
insight into the study of the different types of Bronchiectasis, as well as the
pathophysiology of the disorder. In 2012, in collaboration with NTM Info and Research, Inc
(NTMir) and the consortium members, the COPD Foundation expanded the Bronchiectasis Research
Registry to enroll patients with "non tuberculous mycobacteria (NTM) only". Prior to this
time, the registry included individuals with Bronchiectasis, with or without NTM.
Inclusion Criteria:
- Over the age of 18
- non-CF Bronchiectasis
- Nontuberculosis Mycobacteria (NTM)
Exclusion Criteria:
- Under the age of 18
- CF Bronchiectasis
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