International Lymphatic Disease and Lymphedema Registry
| Status: | Recruiting |
|---|---|
| Conditions: | Breast Cancer, Lymphoma |
| Therapuetic Areas: | Oncology |
| Healthy: | No |
| Age Range: | Any |
| Updated: | 4/6/2019 |
| Start Date: | March 2009 |
| End Date: | December 2025 |
| Contact: | Leslie Roche, RN/BSN |
| Email: | lesroche@stanford.edu |
| Phone: | (650) 7231396 |
The International Lymphatic Disease and Lymphedema Patient Registry and Tissue Bank
The purpose of the National Lymphatic Disease and Lymphedema Registry is to collect health
information in order to study the disease classification, natural history, and impact of
Lymphatic Disease, Lymphedema and Related Disorders and its treatments and medical outcomes.
information in order to study the disease classification, natural history, and impact of
Lymphatic Disease, Lymphedema and Related Disorders and its treatments and medical outcomes.
This project represents the inauguration of a National Patient Registry for Lymphatic
Diseases. This project will be completed through an affiliation with the Lymphatic Research
Foundation, a non-profit organization whose mission is to promote research and the
development of new therapies for patients with lymphatic diseases, including lymphedema. The
registry will provide researchers with much-needed clinical data to study the impact of
diseases of the lymphatic system, in order to develop improved treatments and find a cure for
lymphatic diseases, lymphedema, and related disorders. The establishment of this initiative
is a major step forward in research for direct study of groups of patients with lymphatic
disease. In the future, this project will be able to be linked with a tissue bank, in which
tissue and blood samples derived from patients will be made available for research into human
disease states. A national patient registry and tissue/cell bank program paves the way for
future clinical trials of experimental drugs and therapies designed to treat lymphatic
disease in human subjects.
Diseases. This project will be completed through an affiliation with the Lymphatic Research
Foundation, a non-profit organization whose mission is to promote research and the
development of new therapies for patients with lymphatic diseases, including lymphedema. The
registry will provide researchers with much-needed clinical data to study the impact of
diseases of the lymphatic system, in order to develop improved treatments and find a cure for
lymphatic diseases, lymphedema, and related disorders. The establishment of this initiative
is a major step forward in research for direct study of groups of patients with lymphatic
disease. In the future, this project will be able to be linked with a tissue bank, in which
tissue and blood samples derived from patients will be made available for research into human
disease states. A national patient registry and tissue/cell bank program paves the way for
future clinical trials of experimental drugs and therapies designed to treat lymphatic
disease in human subjects.
Inclusion Criteria:
- Presence of lymphatic disease
Exclusion Criteria:
We found this trial at
1
site
291 Campus Dr
Stanford, California 94305
Stanford, California 94305
(650) 725-3900
Principal Investigator: Stanley G Rockson
Phone: 650-723-1396
Stanford University School of Medicine Vast in both its physical scale and its impact on...
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