Women At Risk: The High Risk Breast Cancer Program



Status:Recruiting
Conditions:Breast Cancer, Cancer
Therapuetic Areas:Oncology
Healthy:No
Age Range:18 - Any
Updated:4/2/2016
Start Date:January 1991
Contact:Amy C Whiffen, MPH
Email:awhiffen@womenatrisknyc.org
Phone:212-305-3238

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The purpose of this study is to increase understanding of women who are at high risk for
developing breast cancer. Data from this group will be collected and entered into a
registry. This registry serves as a clinical database to support research in prevention,
early detection and treatment of breast cancer.

This is a longitudinal cohort study that collects data of eligible women at risk for
developing breast cancer. Patient information will be entered into a secured computerized
database that is used for research on the prevention, early detection and treatment of
breast cancer.

Inclusion Criteria:

- one or more first-degree relatives (mother, daughter, or sister) with pre-menopausal
breast cancer

- two or more first-degree relatives with post-menopausal breast cancer

- tested positive for a BRCA1 or BRCA2 mutation

- a history of biopsy-proven atypical ductal hyperplasia or atypical lobular
hyperplasia

- a history of biopsy-proven lobular neoplasia (lobular carcinoma in situ)

Exclusion Criteria:

- DCIS (ductal carcinoma in situ)

- previous diagnosis of breast cancer
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New York, New York 10065
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