Bronchopulmonary Disease (BPD) Patient Registry
| Status: | Recruiting |
|---|---|
| Conditions: | Bronchitis |
| Therapuetic Areas: | Pulmonary / Respiratory Diseases |
| Healthy: | No |
| Age Range: | Any - 12 |
| Updated: | 6/28/2017 |
| Start Date: | June 2008 |
The Center for Healthy Infant Development (Child) Clinic Patient Registry
The goal of the Bronchopulmonary Dysplasia (BPD) Patient Registry is to collect data on
individuals with neonatal lung disease to better understand the illness and ultimately
improve their care and survival. The Patient Registry was established in 2008 as a means to
monitor important trends in the BPD population and to improve understanding, treatment, and
survival.
individuals with neonatal lung disease to better understand the illness and ultimately
improve their care and survival. The Patient Registry was established in 2008 as a means to
monitor important trends in the BPD population and to improve understanding, treatment, and
survival.
The BPD Patient Registry is used by both clinicians and researchers to better understand BPD
and to improve care of individuals with BPD. Each year the data in the Patient Registry will
be analyzed and an annual report of BPD health trends will be created. Using this
information, BPD clinicians can address quality improvement initiatives, and examine
changing health care issues, including nutritional status, infection control, pulmonary
treatment and/or metabolic issues rapidly and effectively. The Patient Registry will also
play an important role in directing clinical care and in the design of clinical research
studies. Researchers use the registry to help in investigating various aspects of neonatal
lung diseases like BPD, including medications, diagnostic procedures, and eligibility for
clinical trials.
and to improve care of individuals with BPD. Each year the data in the Patient Registry will
be analyzed and an annual report of BPD health trends will be created. Using this
information, BPD clinicians can address quality improvement initiatives, and examine
changing health care issues, including nutritional status, infection control, pulmonary
treatment and/or metabolic issues rapidly and effectively. The Patient Registry will also
play an important role in directing clinical care and in the design of clinical research
studies. Researchers use the registry to help in investigating various aspects of neonatal
lung diseases like BPD, including medications, diagnostic procedures, and eligibility for
clinical trials.
Inclusion Criteria:
- Bronchopulmonary Dysplasia (BPD)
We found this trial at
1
site
Boston, Massachusetts 02115
Principal Investigator: Hayden Lystra, MD, MMSc
Phone: 617-355-1900
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