Survivor Stories: Impact on Cancer Patients' Quality of Life and Follow-up



Status:Completed
Conditions:Breast Cancer, Cancer
Therapuetic Areas:Oncology
Healthy:No
Age Range:30 - Any
Updated:5/13/2017
Start Date:November 2009
End Date:December 2016

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The purpose of this study is to evaluate in a randomized controlled trail, an innovative
cancer communication strategy to help African American breast cancer patients cope with a
variety of challenges during and after treatment and to better adhere to recommended
treatment guidelines and follow-up care.

Disparities in incidence and mortality between African Americans and Caucasians for a number
of cancers have been well documented. This study builds on previous work in St. Louis to
overcome barriers to access to breast screening, identifying and addressing factors
associated with access to care once diagnosed, and factors contributing to delay in
diagnosis and completion of therapy. African American breast cancer patients randomly
assigned to the intervention arm of the trial will have access to the Survivor Stories
Tablet, a tablet computer, on which they will browse an archive of 1-3 minute videotaped
survivor stories about five topics: coping, relationships, experiences with the health care
system, follow-up care, and quality of life (QOL) living with breast cancer. Patients will
have the tablet for two weeks after enrollment in the study, and again at 6 and 12 months.
Patients in the control arm will receive usual care.

Inclusion Criteria:

- African American women

- First primary ductal carcinoma in situ (DCIS) or stages I, II, or III invasive breast
cancer.

Exclusion Criteria:

- Prior DCIS or breast cancer diagnosis

- Stage IV or metastatic breast cancer

- Having received double mastectomy

- non-English speaking,

- Having known psychiatric or neurologic disorders

- Being cognitively impaired according to weighted error scores on the
Orientation-Memory-Concentration Test

- Being unwilling or unable to give consent
We found this trial at
1
site
660 S Euclid Ave
Saint Louis, Missouri 63110
(314) 362-5000
Washington University School of Medicine Washington University Physicians is the clinical practice of the School...
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mi
from
Saint Louis, MO
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