Atypical Hemolytic-Uremic Syndrome (aHUS) Registry



Status:Recruiting
Conditions:Gastrointestinal, Hematology
Therapuetic Areas:Gastroenterology, Hematology
Healthy:No
Age Range:Any
Updated:3/30/2019
Start Date:April 2012
End Date:December 2025
Contact:Caroline Collupy
Email:ahus-registry@syneoshealth.com

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An Observational, Non-Interventional, Multi-Center, Multi-National Study of Patients With Atypical Hemolytic-Uremic Syndrome (aHUS Registry)

Post-marketing safety data on patients treated and untreated with eculizumab.

The study will capture post-marketing safety data on patients treated with eculizumab.
Additionally, the study will collect information on the progression of disease in all
patients.

Inclusion Criteria:

- Male or female patients of any age, including minors, who have been diagnosed with
aHUS

- Able to give written informed consent. Patient or patient's parent/legal guardian must
be willing and able to given written informed consent and the patient (if minor) must
be willing to give written informed assent [if applicable as determined by the central
Institutional Review Boards/Independent Ethics Committees (IRB/IEC)].

- ADAMTS13 > 5%, if performed.

Exclusion Criteria:

- Hemolytic Uremic Syndrome (HUS) only due to Shiga Toxin
We found this trial at
9
sites
2015 Uppergate Drive
Atlanta, Georgia 30322
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75 Francis street
Boston, Massachusetts 02115
(617) 732-5500
Brigham and Women's Hosp Boston’s Brigham and Women’s Hospital (BWH) is an international leader in...
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Boston, MA
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Chicago, Illinois 60614
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Chicago, IL
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Columbus, OH
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Gainesville, FL
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Penrith, New South Wales 2750
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Penrith,
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660 S Euclid Ave
Saint Louis, Missouri 63110
(314) 362-5000
Washington University School of Medicine Washington University Physicians is the clinical practice of the School...
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Saint Louis, MO
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3800 Reservoir Rd NW
Washington, District of Columbia 20007
(202) 444-2000
Georgetown University Hospital MedStar Georgetown University Hospital is a not-for-profit, acute-care teaching and research hospital...
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Washington,
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Winston-Salem, North Carolina 27103
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Winston-Salem, NC
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