Providing Resources to Enhance Patients' Readiness to Make Decisions About Kidney Disease: The PREPARE NOW Study



Status:Completed
Conditions:Renal Impairment / Chronic Kidney Disease
Therapuetic Areas:Nephrology / Urology
Healthy:No
Age Range:18 - Any
Updated:3/1/2019
Start Date:May 2015
End Date:April 2016

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Providing Resources to Enhance Patients' Readiness to Make Decisions About Kidney Disease: Partnering to Break the News, Review All Options, Weigh Pros and Cons (PREPARE NOW)

This study evaluates the effectiveness of patient educational materials (a book and DVD) to
help patients with chronic kidney disease make early, shared, and informed decisions about
kidney replacement therapy. Half of the participants will receive the educational materials
and half will receive usual care from their doctors.

The investigators will study the effectiveness of patient educational materials (a book and
DVD, called the PREPARED materials) to help patients with chronic kidney disease make early,
shared, and informed decisions about kidney replacement therapy. Half of the participants
will receive the PREPARED materials and half will receive usual care from their doctors.
PREPARED materials feature patients and their families discussing the pros and cons of
different treatment options for kidney failure. The investigators will randomly assign
patients already under the care of a nephrologist to receive the video and book or to receive
their usual nephrology care. They will measure the degree to which patients in either study
arm are prepared for kidney failure treatment at follow up.

Inclusion Criteria:

- 18 years or older

- English speaking

- Advanced kidney disease defined as an eGFR < 20 mL/min/1.73m2 at their last clinical
appointment with their nephrologist

- Have not initiated a Renal Replacement Therapy

Exclusion Criteria:

- Cannot speak English

- Have initiated Renal Replacement Therapy
We found this trial at
1
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Baltimore, MD
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